An edition of Ethics and newborn genetic screening
(2009)
Ethics and newborn genetic screening
new technologies, new challenges
by Mary Ann Baily and Thomas H. Murray
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Previews available in: English
Subjects
Moral and ethical aspects, Newborn infants, Diseases, Genetic screening, Genetic Screening, Health Policy, Genetic disorders, Neonatal Screening, Diagnosis, Inborn Genetic Diseases, Ethics, Newborn Infant, Infants (newborn), diseases, Human chromosome abnormalities, diagnosis, Children, diseases, diagnosis, Medical policy, Genetic Testing, Screening, Pasgeborenen, Aangeboren afwijkingen, Diagnose, Dilemma's, Ethische aspecten, Bio-ethiekShowing 2 featured editions. View all 2 editions?
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1
Ethics and newborn genetic screening: new technologies, new challenges
2009, Johns Hopkins University Press
in English
0801891515 9780801891519
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WorldCat
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2
Ethics and newborn genetic screening: new technologies, new challenges
2009, Johns Hopkins University Press
in English
0801891515 9780801891519
|
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Libraries near you:
WorldCat
|
Book Details
Table of Contents
Fair distribution of newborn screening costs and benefits / Mary Ann Baily
Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse
An advocate's perspective on newborn screening policy / Jannine DeMars Cody
Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross
Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton
State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen
Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell
The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.]
What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.]
Research for newborn screening : developing a national framework / Jeffrey R. Botkin
Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke
Parental permission for research in newborn screening / Jeffrey R. Botkin
Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin
Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond
What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.
Edition Notes
Includes bibliographical references and index.
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History
- Created November 4, 2008
- 5 revisions
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| July 31, 2019 | Edited by MARC Bot | associate edition with work OL18706862W |
| August 18, 2010 | Edited by IdentifierBot | added LibraryThing ID |
| April 24, 2010 | Edited by Open Library Bot | Fixed duplicate goodreads IDs. |
| April 16, 2010 | Edited by bgimpertBot | Added goodreads ID. |
| November 4, 2008 | Created by ImportBot | Imported from Library of Congress MARC record |