MARC Record from Library of Congress

LEADER: 02992cam a22003738a 4500
001 2008033831
003 DLC
005 20080807141651.0
008 080730s2009 mdu b 001 0 eng
010 $a 2008033831
020 $a0801891515
020 $a9780801891519 (hardcover : alk. paper)
035 $a(DNLM)101480169
040 $aDNLM/DLC$cDLC$dDLC
042 $apcc
050 00 $aRJ255.6.D55$b.E84 2009
060 10 $aWS 200$bE84 2009
082 00 $a618.92/0042$222
245 00 $aEthics and newborn genetic screening :$bnew technologies, new challenges /$cedited by Mary Ann Baily and Thomas H. Murray.
260 $aBaltimore :$bJohns Hopkins University Press,$c2009.
263 $a0907
300 $ap. ;$ccm.
504 $aIncludes bibliographical references and index.
505 0 $aFair distribution of newborn screening costs and benefits / Mary Ann Baily -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine DeMars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.] -- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.
650 0 $aGenetic disorders$xDiagnosis$xMoral and ethical aspects.
650 0 $aNewborn infants$xDiseases$xDiagnosis$xMoral and ethical aspects.
650 0 $aGenetic screening$xMoral and ethical aspects.
650 12 $aGenetic Diseases, Inborn$xdiagnosis.
650 12 $aNeonatal Screening$xethics.
650 22 $aGenetic Screening$xethics.
650 22 $aHealth Policy.
650 22 $aInfant, Newborn.
700 1 $aBaily, Mary Ann.
700 1 $aMurray, Thomas H.,$d1946-