Achieving justice in genomic translation

rethinking the pathway to benefit

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Last edited by MARC Bot
April 26, 2025 | History

Achieving justice in genomic translation

rethinking the pathway to benefit

This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.

Publish Date
Language
English
Pages
212

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Previews available in: English

Edition Availability
Cover of: Achieving Justice in Genomic Translation
Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
2012, Oxford University Press
in English
Cover of: Achieving justice in genomic translation
Achieving justice in genomic translation: rethinking the pathway to benefit
2011, Oxford University Press
in English
Cover of: Achieving Justice in Genomic Translation
Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
2011, Oxford University Press, Incorporated
in English

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Book Details


Table of Contents

Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards
The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler
The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton
The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards
Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra
The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke
Genomics and the health commons / Nora Henrikson and Wylie Burke
Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts
What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.

Edition Notes

Includes bibliographical references and index.

Published in
Oxford, New York

Classifications

Dewey Decimal Class
174.2/96042
Library of Congress
QH438.7 .A26 2011, QH438.7.A26 2011

The Physical Object

Pagination
x, 212 p. :
Number of pages
212

Edition Identifiers

Open Library
OL25138382M
ISBN 10
0195390385
ISBN 13
9780195390384
LCCN
2011011621
OCLC/WorldCat
690088075

Work Identifiers

Work ID
OL16360490W

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April 26, 2025 Edited by MARC Bot import existing book
July 27, 2022 Edited by ImportBot import existing book
August 2, 2020 Edited by ImportBot import existing book
December 28, 2011 Created by LC Bot import new book