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This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.
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Previews available in: English
Edition | Availability |
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1
Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
2012, Oxford University Press
in English
1283427931 9781283427937
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2
Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
2011, Oxford University Press, Incorporated
in English
0199909741 9780199909742
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3
Achieving justice in genomic translation: rethinking the pathway to benefit
2011, Oxford University Press
in English
0195390385 9780195390384
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Book Details
Table of Contents
Edition Notes
Includes bibliographical references and index.
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April 26, 2025 | Edited by MARC Bot | import existing book |
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December 28, 2011 | Created by LC Bot | import new book |