MARC record from Internet Archive

LEADER: 02967cam a22003734a 4500
001 2011011621
003 DLC
005 20120107090346.0
008 110316s2011 enka b 001 0 eng
010 $a 2011011621
016 7 $a101556570$2DNLM
020 $a9780195390384 (hardback : alk. paper)
020 $a0195390385 (hardback : alk. paper)
035 $a(OCoLC)ocn690088075
040 $aDNLM/DLC$cDLC$dYDX$dNLM$dBTCTA$dYDXCP$dBWX$dCDX$dSHH$dDLC
042 $apcc
050 00 $aQH438.7$b.A26 2011
060 00 $a2011 J-924
060 10 $aWB 60
082 00 $a174.2/96042$222
245 00 $aAchieving justice in genomic translation :$brethinking the pathway to benefit /$cedited by Wylie Burke ... [et al.].
260 $aOxford ;$aNew York :$bOxford University Press,$cc2011.
300 $ax, 212 p. :$bill. ;$c25 cm.
504 $aIncludes bibliographical references and index.
505 0 $aMaking good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
650 0 $aHuman genetics$xResearch$xMoral and ethical aspects.
650 0 $aGenomics$xResearch$xMoral and ethical aspects.
650 0 $aGenetic screening$xMoral and ethical aspects.
650 12 $aGenetic Research$xethics.
650 22 $aBioethical Issues.
650 22 $aGenetic Predisposition to Disease.
650 22 $aGenetic Testing$xethics.
650 22 $aTranslational Medical Research$xethics.
700 1 $aBurke, Wylie.