An edition of Principles and practice in biobank governance
(2009)
Principles and practice in biobank governance
by Jane Kaye and Mark Stranger
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Subjects
Tissue banks, Management, Government policy, Bioethics, International cooperation, Clinical Governance, Biobanks, Standards, Collection and preservation, Biological specimens, Biological Specimen Banks, Public Policy, Tissues, Procurement of organs, tissues, Bank management, Biological specimens, collection and preservation, Political planning, Transplantation of organs, tissues, etc.| Edition | Availability |
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1
Principles and Practice in Biobank Governance
2016, Taylor & Francis Group
in English
1317075870 9781317075875
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2
Principles and Practice in Biobank Governance
2016, Taylor & Francis Group
in English
1317075889 9781317075882
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3
Principles and Practice in Biobank Governance
2016, Taylor & Francis Group
in English
1317075862 9781317075868
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4
Principles and Practice in Biobank Governance
2016, Taylor & Francis Group
in English
1315602156 9781315602158
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Principles and Practice in Biobank Governance
2016, Taylor & Francis Group
in English
1138276936 9781138276932
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Book Details
Table of Contents
What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley
Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks in the UK / Nadja Kanellopoulou
From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff
Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter
Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski
Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano
Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx
Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis
Privacy interests in biobanking : a preliminary view on a European perspective
David townend ... [et al.]
Feeding back significant findings to participants and relatives / Loane Skene
Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.]
hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.]
Biobanking networks : what are the governance challenges? / Jane Kaye
Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.]
UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt, and Graeme Laurie
The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin
From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.
Edition Notes
Includes bibliographical references and index.
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History
- Created August 12, 2009
- 4 revisions
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| July 31, 2019 | Edited by MARC Bot | associate edition with work OL18568932W |
| June 8, 2011 | Edited by OCLC Bot | Added OCLC numbers. |
| April 16, 2010 | Edited by bgimpertBot | Added goodreads ID. |
| August 12, 2009 | Created by ImportBot | Imported from Library of Congress MARC record |