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Ian Brown's son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: at most, three hundred people around the world live with it. At thirteen, Walker is still in diapers: he is globally delayed, he can't speak, and he has to wear cuffs on both arms so he won't constantly hit himself. He will require constant care for the rest of his life. The boy in the moon tells the story of one frail boy and the tiny constellation of people who love and care for him. From this intimate perspective, Ian Brown opens out a profound meditation on what life is worth, and what it means for all of us.
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Previews available in: English
Subjects
Handicapped children, Parents of handicapped children, Genetic disorders in children, Father-son relationship, Fathers and sons, Patients, Genetic disorders, Family relationships, Parents of children with disabilities, Biography, Maladies génétiques chez l'enfant, Biographies, Relations familiales, Parents d'enfants handicapés, Pères et fils, Canada, biographyPlaces
CanadaShowing 2 featured editions. View all 2 editions?
Edition | Availability |
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1
The boy in the moon: a father's journey to understand his extraordinary son
2011, St. Martin's Press
in English
- 1st U.S. ed.
0312671830 9780312671839
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2
The boy in the moon: a father's search for his disabled son
2009, Random House Canada
in English
0307357104 9780307357106
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Book Details
Edition Notes
Originally published: Toronto, Ontario : Random House Canada, c2009.
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Feedback?April 17, 2024 | Edited by ImportBot | import existing book |
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November 9, 2011 | Created by LC Bot | import new book |