MARC Record from Library of Congress

LEADER: 05044cam a22003734a 4500
001 2001020287
003 DLC
005 20050607110523.0
008 010206s2001 mdua b 000 0 eng c
010 $a 2001020287
020 $a081083488X (alk. paper)
035 $a(DNLM)101087148
040 $aDNLM/DLC$cDLC$dDLC
042 $apcc
050 00 $aRM161$b.G55 2001
060 10 $aWF 26$bG473b 2001
082 00 $a615.8/36$221
100 1 $aGilgoff, Irene S.
245 14 $aThe breath of life :$bthe role of the ventilator in managing life-threatening illnesses /$cIrene S. Gilgoff and the editors of the American Institute of Life-Threatening Illness and Loss.
260 $aLanham, Md. :$bScarecrow Press,$c2001.
300 $avi, 263 p. :$bill. ;$c24 cm.
504 $aIncludes bibliographical references.
505 8 $aMachine generated contents note: 1 A Review of Ventilator Use in Duchenne's -- Muscular Dystrophy -- Agatha P. Colbert -- 2 Life with Dignity-Death with Dignity -- Esther Ehrenberg -- 3 Cardiac Function in Duchenne's Muscular Dystrophy: -- Use of Radionuclide Ventriculography in Initial Evaluation, -- Progress, and Stress Testing -- Charles A. Stewart, Irene Gilgoff, Guo-Long Hung, -- Rana A. Bahl, Ahmet Baydur, and Radha Sarma -- 4 Living and Dying with Ventilator-Dependent Quadriplegia -- Frederick M. Maynard -- 5 Images of Life and Death -- Julie G. Madorsky, Shirley M. Acosta, and Daniel Heilburn -- 6 The Ventilator: Psychosocial and Medical Aspects -- Karen Dikeman and Marta Kazandjian -- 7 The Impact of Ventilation Technology: Contrasting -- Consumer and Professional Perspectives -- Joseph Kaufert and David Locker -- 8 Automony, Perception, and Empowerment: Issues in -- Achieving Quality of Life for Ventilator-Dependent -- Individuals -- Audrey J. King -- 9 Discontinuing Ventilator Support at Home: -- Clinical Experience with Amyotrophic Lateral -- Sclerosis in California -- Barbara T. Beal -- 10 Description of Self -- Albert Anderson -- 11 Ethical Issues Related to the Special Care Unit -- Barbara J. Daly -- 12 Case History Report-The Atypical Patient: -- An Adolescent with ALS in an ICU -- Marilyn M. Raumsley -- 13 Use of Long-Term Assisted Mechanical Ventilation -- in Patients with Spinal Muscular Atrophy -- Irene S. Gilgoff, Emily Kahistrom, Eithne MacLaughlin, -- and Thomas G. Keens -- 14 Psychosocial Stresses and Coping Resources in Families -- Caring for Ventilator-Assisted Children at Home -- Susan E. Keens, Mary T. Jansen, Lee E. Lipsker, -- Eric M. Levander, Jon E. Woo, Frank T. Hsieh, -- Irene S. Gilgoff, and Thomas G. Keens -- 15 Ethical Problems Concerning Treatment of and Attitude -- toward Chronic Respiratory Insufficiency in -- Muscular Dystrophy -- Bente Madsen -- 16 Chronic Ventilatory Support at Home for Infants and -- Children with Ventilatory Muscle Weakness -- Thomas G. Keens, Mary T. Jansen, Jon E. Woo, -- Sally L. Davidson Ward, Pamela K. Dewitt, and Irene S. Gilgoff -- 17 Discontinuation of Ventilatory Support: -- A Personal Perspective -- Terry Kinzel -- 18 The Ventilator-A Way to a Positive Life -- Jack Genskow 19 A 35-Year Perspective on the Utilization of Mechanical -- Ventilation As Experienced by the Author -- Ira W. Holland -- 20 Options for Living and Dying in Amyotrophic -- Lateral Sclerosis -- Augusta Alba -- 21 Impact on the Family -- Margaret Mikol -- 22 Ventilator Users, Home Care, and Independent Living: -- A Historical Perspective -- Gini Laurie -- 23 Prolongation of Life Spans of Duchenne's Muscular -- Dystrophy Patients in the Hospital Care Program in Japan -- Masakuni Mukoyama -- 24 Cardiovascular Abnormalities in Duchenne's -- Muscular Dystrophy -- Radha J. Sarma, Syed Ejaz Naqvi, Sekhar C. Kota, -- and Robert Sudrann -- 25 A Historical Perspective on the Use of Noninvasive -- Ventilatory Support Alternatives -- John R. Bach -- 26 An Astronaut on Earth -- Paul Kahn -- 27 Ventilating Feelings -- Hugh Newton-John -- 28 Repression, Regression, and Respiration: -- Ventilators and the Post-Polio Patient -- Margaret E. Backman -- 29 Regional Home Care Program for Ventilator- -- Dependent Patients: Report of the First Five Years -- Edward Anthony Oppenheimer 30 Occupational Therapy and the Ventilator-Dependent -- Patient: The Impact on Psychosocial and Motoric Aspects of -- Activities of Daily Living -- Ann Burkhardt -- 31 Going Home on a Ventilator: A Nursing Model -- Kathleen 1. Dunleavy -- 32 Technologically Dependent Children: Their Effect on -- the Hospital System -- James C. Bernier and Sarah J. Gossler.
650 0 $aRespiratory therapy.
650 0 $aArtificial respiration.
650 0 $aRespirators (Medical equipment)
650 12 $aRespiration, Artificial$xpsychology.
650 12 $aVentilators, Mechanical.
650 22 $aInformed Consent.
650 22 $aLife Support Care.
650 22 $aMedical Futility.
650 22 $aPatient Advocacy.
710 2 $aAmerican Institute of Life-Threatening Illness and Loss.
856 41 $3Table of Contents$uhttp://www.loc.gov/catdir/toc/fy02/2001020287.html